Its almost time for me to take Ammon to the University of Utah for this much awaited, most worried over specialized testing of his abnormal brain. As Ammon was awake, alert, and actively jumping off the bed at 3:30 am this morning…again….I got really anxious about what is about to happen in the next 72 hours.
Depending on the weather, we make the 4 hour drive to Salt Lake City on Monday night or Tuesday morning. I’ll do my best to tire him out so he takes a late nap on Tuesday and then its party time as we try to keep him awake from 10 PM Tuesday night until they put his head in the Magnetoencepholography (MEG) machine for 2-3 hours. Heaven better help us because if it doesn’t we are in big trouble! Ammie can’t sit still under calm conditions and due to his early history he becomes hysterical when restrained. If you believe, help call some guardian angels to come play with my boy Wednesday morning and keep him still!
On Tuesday night my 21 year old daughter, her fiancé, my 22 son, and I will all take shifts having a Teletubby dance party, car races, Little Einstiens, Diego and Dora video marathon and anything else we can think of to keep him awake. It will not be pretty! And I’m just talking about ME…LOL!
But perhaps finally, the part of his brain to makes him fall to the floor in uncontrolled seizures can be mapped and localized. Our greatest hope is that surgery will be an option and that blasted part of his brain can be removed. Who would ever think you would pray for brain surgery as an option for your child?! But, we are. We thank all of you for doing the same.
Sunday, January 17, 2010
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