Can you call something you don't want to experience an adventure anyway? You know that we have named Ammon's blog
http://ammonsadventures.blogspot.com
We just didn't know when we named it that just how exciting this journey would be!
On Friday afternoon Ammon had a seizure...a long and significant one. When he couldn't come out of it, we took him to the emergency room here in Cedar City. Nearly an hour after going into a full tonic clonic (they used to be called grand mal) seizure, he finally was able to come back to us. The valium and oxygen helped relax him to get oxygen to his brain and then his brain could come back into sync. We were sent home with our very own oxygen tank so that perhaps next time this happens we can help him immediately as the seizure begins.
Our dear boy has had quite a weekend. Can I just tell you that his survivor instinct is strong and right under the surface. This child will not go down without fighting it tooth and nail. He is a FIGHTER. To put him under sedation for the MRI he had the IV meds (we had a failed MRI atttempt earlier when they tried to sedate him orally. He woke up 1 minute into the MRI and would not stay in the MRI machine. So this time, we knew he had to be sedated with an IV. Even at that it was a nightmare.
He was given enough meds to get him to sleep which was quite a large dose as compared to most children. Then I carried him to the MRI room and when we tried to put him on the MRI bed he woke up and was not having any of that. They ended up giving him three more shots of the sedative until he was out enough to secure on the bed and send into the machine. He did great then! He was in the machine for about 30 minutes as I stood next to the machine keeping watch. The tech came in and said that we were almost done. We just needed to shoot the contrast stuff into his IV and send him back in the MRI machine for another 5 minutes.
Well.....5 minutes, HA! He got the contrast in and the tech pushed the button to get him back in the machine and it woke him and he became frantically hysterical about being in that tiny space. Remember how much he likes elevators, small rooms, doctor's offices, etc? He was able to Houdini out of his papoose and aqs he is clawing his way out, I'm trying to grab him from crawling out the back end of the machine and the magnetic force pulled my glasses off my face and my glasses shot through the air like magic and whacked Ammon right in the middle of his face. Poor boy had it coming in all directions.
After three more doses of sedative he was safely back in the machine and in another 10 minutes the MRI WITH CONTRAST was completed. We were exhausted!! But they were able to get really good scans of the cyst. This will really help. His blood work was concerning. He needs much more medicine as his valproic acid level was much too low. The dose has been increased and we'll go back to our hospital on Friday for more blood work to see if his levels are stabilizing or if the dose will have to be increased even more. They did find he has a sinus infection and we are now on anti-biotics too. How much fun we have trying to get his medicine down him!
We did go to Dairy Queen that Ammon has never visited and the closer we got to the door the more apprehensive he became and started backing back towards the car. Poor fella thought we were taking him to another doctor. We had to carry him in and he wasn't fine until he could see french fries on someone's table. PHEW.
We wanted to make sure that we had family pictures done on Monday as we had all the children together for the first time since Ammon came home. Monday was the first anniversary of Grandma Ellison's burial so we were at the cemetary to put flowers on the grave. Our children were concerned that there were children buried there who had no flowers on their graves so we spent some time taking our flowers to those children so they could be remembered too.
We are just waiting now for more test results and scans to be read to know what will happen next. So, we can just schedule day to day and not too far in advance. We just don't know yet what is coming down the pike. Thank you so much for all your prayers and concern. I was calling on all your prayers while he was trying to escape the MRI machine and I'm sure glad you heard me and we were able to finish that.
You can see some pictures on the blog of the weekend. He sure loves his big sister Makayla and she is still completely smitten with him.
